One day at a time

It’s been a minute since our last update. We’ve been adjusting to changes and seeing some signs of progress. Tom is now 18 days without a seizure and 4 weeks post crash. We got him out for a gentle ride today to the library and Tigard Farmer’s market. We have been reducing his steroid and tomorrow we will try to have him go off them completely. We’ve also experimented with leaving him alone for a few hours as his doctors said we could and he has been fine. He can’t ride vigorously or drive but we are adjusting to this stage until he can resume regular activities again. I’d like to say he has gotten used to my driving but he’s learned to just look out the window and enjoy the view. 

As for me I am 3/4 of the way done with radiation! If all goes according to plan I will finish on Friday! The area of radiation will also be smaller starting on Tuesday and just limited to the surgical site. I am feeling great and still teaching with no fatigue. I finally learned to hold my breath properly for treatment starting last week and the treatments have gone much smoother. 

We’ve definitely had a lot on our plates in addition to the above, we have lost two relatives to cancer since my diagnosis and I am the personal rep for one of the estates. I feel like it’s been too much to process it all but thankfully we have had a lot of friends and family step up to help us.  We are deeply grateful to our village through all this, people have still been feeding us and bringing sweet gifts by and helping out with Tom when needed and stepping up to sub for me when crises strike. We appreciate all the messages of support as well. We’re still in the thick of it and trying to take it one day at a time.