Tom was supposed to have his regular MRI this week and start what was hopefully his last round of chemo tonight. We were finally supposed to get answers on what has been happening in his head for the past month-better, worse? We had been waiting on approval for his PET MRI still. Someone at Providence got the bright idea to cancel his regular MRI last Thursday when they saw the order for the PET MRI despite it neither being approved or scheduled. We both lost it and they won’t fess up to who did it… Thankfully Tom was able to get it rescheduled for next week which is a minor miracle because getting an MRI at Providence these days is really difficult given how booked they are. They delayed the chemo because they don’t want it in his system if he has tumor regrowth ans needs surgery. So another week of waiting 😩. And that PET MRI… well it got booked and approved today for June 5, which is basically no help. Tom finished his steroids and is doing well. His balance recovered and he found a killer deal on a new bike… Please pray for us and send good energy. I can actually feel ulcers developing as we wait for it. I want to believe it is just swelling and I do believe that, but it is still scary as hell. If it’s tumor, he will need a craniotomy. If it’s tumor we already planned with my surgeon that we will reschedule my surgery and I will start hormone therapy until he is recovered. But for now, he rides, I dance, we pray.
