We’ve had Tom home for about 24 hours and everything is going really well! He does not have any pain and is already frustrated by his activity restrictions. We are thrilled with how much easier this part has been than last time! He is okay for visitors and if you come by don’t feel pressured to bring food or anything other than your walking shoes as he may want a walk!
Huge thanks to Torgy for meeting me yesterday with a latte and food the second they took Tom away 🥹. Suzanne came by too and the time flew by with the good company I had with me. Thank you both!
What’s next? We have two weeks (no strenuous activity!!! Tom are you reading this part???) until his follow-up appointment but that is just surgical and we likely won’t have any news on the pathology yet. He is on steroids for 10 days and anti-seizure medication for a week. Once they have the genotyping done on his tumor we can discuss treatment options. Likely this will involve immunotherapy but could also involve other things like more chemo and radiation, perhaps the return of the new and improved Optune he wore 8 years ago. He also told me he still wants to race the Cross Crusade series again this year!
If you want to read more about the pathology they are doing, this is a great article!
Thanks for all your messages of support!